The Caregiving Divide
An Illustrated Pocket Guide to the Caregiving Economy—and Where It Breaks Down
For most, long-term care begins not with planning but with a single moment.
When Hector learns that his mother needs daily care, he’s suddenly responsible for finding services, funding, and answers he’s never had to think about before.
When Rachel learns her mother has dementia—an overwhelming diagnosis for the entire family—she must begin considering long-term dementia care.
Families suddenly face questions they were never prepared to answer:
What kind of care is needed?
What options exist nearby?
What can we afford?
This guide serves as a step-by-step primer, guiding readers through the caregiving system and the growing divide between care needs and access to care.
To purchase bulk quantities of the printed pocket guide, please contact us.
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This illustrated pocket guide was developed by The CareWorks Project, in partnership with the American Society on Aging. This collaboration reflects a shared commitment to advancing understanding of long-term care and supporting policies and practices that strengthen aging, disability, and caregiving systems nationwide.
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What You’ll Find Inside
The Caregiving Economy
How caregiving saves lives—and holds up an essential yet broken system for millions.
The Caregivers
Why millions of direct care workers and family caregivers hold the system together.
The Caregiving Divide
How access to care increasingly depends
on income, geography, and pure luck.
“This guide communicates the caregiving ecosystem with clarity, beauty, and pragmatism. It sets a new standard for how we make complex systems understandable and navigable. The American Society on Aging is proud to partner on this resource.”
— Leanne Clarke-Shirley, Chief Executive Officer of the American Society on Aging, one of the nation’s leading organizations advancing leadership and innovation in aging.
Meet the Founder
Founder & CEO of The CareWorks Project, Robert Espinoza is a national expert on the care economy, advising leaders on caregiving, aging, workforce policy, and narrative strategy to create a care economy that works for everyone.